Save lives of Children with Thalassemia

Disclaimer: The names and some details in this article have been changed to protect the confidentiality, privacy, and safety of the individuals involved.

At Al-Mustafa Thalassemia Centre, countless patients benefit from free thalassemia treatment, which includes medical assistance as well as emotional and social support. One such patient, 9-year-old Amina Khan, exemplifies the positive impact of this comprehensive care.

A Unique Personality

Amina, a bright and energetic student, has been under the treatment of Al-Mustafa for the past nine years. Despite her chronic illness, Amina remains an active participant in her community, attending school and engaging in various events with her peers.

One of the most charming attributes of Amina is her vivacity. Known for her talkative nature, she lights up any room with her energy and enthusiasm. Her active involvement in activities is an inspiration to others around her, as she embraces life despite her health challenges.

Family Background

This brave little girl comes from a middle-class family, with her father, working as a salesman and her mother managing household responsibilities. She has one brother and two sisters, creating a supportive family environment. Importantly, Amina is not an orphan, which adds to the strength of her familial support system throughout her treatment journey.

Health Progress and Outcomes 

Before receiving treatment, Amina struggled with her health, frequently experiencing laziness, infections, and other ailments that hindered her participation in everyday activities. However, her ongoing treatment at Al-Mustafa has transformed her life. Amina has shown remarkable improvement; she now actively participates in school, engages in social events, and enjoys a fulfilling childhood. This change is a testament to the centre's effective medical care and supportive environment.

Family's Perspective on Al-Mustafa Thalassemia Centre

Amina's parents express their deep satisfaction with the quality of care their daughter receives at Al-Mustafa. They commend the staff for their professionalism and compassionate approach, which has made a significant difference in Amina's life. The sense of community fostered at the centre helps families like Amina’s feel supported and involved in their child's treatment journey.

Community Engagement

Amina and her family are actively involved in various events organized by the centre, including picnics and birthday celebrations. Their participation not only adds joy to their lives but also strengthens the bonds within the community of patients and their families. This sense of belonging is crucial for families navigating the challenges of thalassemia.

Comprehensive Care Services

At Al-Mustafa, the services provided extend beyond just medical treatments. Patients like Amina have access to regular check-ups with haematologists, necessary medications, and enjoyable recreational activities. This holistic approach ensures that they not only receive the medical care they need but also enjoy a quality of life that feels normal and complete.

Amina Khan's journey at Al-Mustafa Thalassemia Centre highlights the importance of comprehensive care in managing thalassemia. With the right treatment and support, young patients can thrive, enriching their lives and those of their families. As Amina continues to grow and engage in her community, she stands as a beacon of hope and resilience for many others facing similar challenges. Al-Mustafa’s commitment to providing quality care remains a vital resource for patients and their families, ensuring they do not feel alone in their journey.

Dear Valued Donors,

Welcome to a world where each smile is a testament to hope, resilience, and the unwavering kindness of people like you. Your support has been crucial in transforming lives through the Al-Mustafa Cleft Project. We take immense pride in sharing the incredible outcomes and heartfelt journeys of our patients from January to May 2024. This report brings you into the heart of our mission, showcasing the profound impact of your generosity.

Transformative Surgeries

In the first five months of 2024, the Al-Mustafa Cleft Project successfully operated on 110 children, giving each one a chance to smile without fear. These transformative surgeries are the cornerstone of our mission, and every success story is a reflection of your support.

Comprehensive Care Beyond Surgery

Our holistic care approach ensures that each patient receives the necessary support before, during, and after their surgery. The support services include:

- Pre-op and Post-op Investigations: Each of the 110 patients underwent thorough investigations to ensure their well-being.

- Dental Treatments: Alongside surgical care, dental treatments play a vital role in our patient care.

Serving Vulnerable Age Groups

Our patients span a wide range of ages, each with unique needs and stories. Here's the classification based on age:

- Children aged 1 to 12 months old: 56

- Children aged 1 to 5 years old: 29

- Children aged 6 to 10 years old: 10

- Children aged 11 to 15 years old: 4

- Young adults aged 16 to 20 years old: 6

- Adults aged 20 and above: 5

Treatment Details from January to May 2024

Here are the specifics of the various treatments conducted:

- Cleft Lip Surgeries: 80

- Cleft Lip and Palate Surgeries: 30

- Lab Investigations: 83 different lab tests were performed to ensure patient safety and health.

Broader Spectrum of Care

Apart from cleft surgeries, we provided the following crucial treatments and services:

- Consultations: 498 consultations were provided to address patient concerns, guide them through the process, and ensure comprehensive care.

- Admissions for Postponed Surgeries: 100 patients required admissions due to postponed surgeries, ensuring they received continuous care and preparation.

A Journey of Smiles

Each patient we serve has a unique story of pain, hope, and eventual joy. Take for instance little Sara, a 3-year-old whose cleft lip surgery was a turning point in her young life. Before surgery, Sara's family worried about her future, but today, her radiant smile and playful spirit are a testament to the transformative power of your support.

Path Forward: Embracing More Smiles

Your generosity fuels our mission, enabling us to create countless more stories of hope and transformation. As we look ahead, we are committed to enhancing our facilities, broadening our services, and ensuring that every child with a cleft condition receives the love and care they deserve.

Conclusion

Thank you for being a cornerstone of the Al-Mustafa Cleft Project. Your contributions are not just numbers; they are the reason behind the joyous smiles of 110 children. Together, we are changing lives, one smile at a time.

With heartfelt gratitude