Save lives of Children with Thalassemia

In a quest to provide comprehensive care for Thalassemia patients in the community, the Al Mustafa Welfare Society has embarked on an incredible journey. Initially managing a Thalassemia department at Al-Mustafa Hospital, they quickly recognized the need for expansion due to the growing number of patients. On 15 August, they unveiled their latest venture - a state-of-the-art Thalassemia Day Care Center. This report aims to share the exciting progress made by society and express gratitude to the generous donors whose support made this dream a reality.

Facilities at the Thalassemia Day Care Center:

The Al Mustafa Welfare Society's Thalassemia Day Care Center is a beacon of hope for children dealing with this challenging condition. Here are the remarkable facilities that have brought joy and improved the lives of countless children and their families:

1. Treatment Units:

The heart of the centre lies within ten specialized treatment units. These units are equipped with cutting-edge technology and resources to provide Thalassemia patients with various medical procedures and exceptional care.

2. Kids Play Area:

Understanding the importance of overall well-being, the centre has created a dedicated and well-designed play area exclusively for children with Thalassemia. This space fosters growth, happiness, and a chance for children to forget their worries.

3. Blood Transfusion Services:

Efficient and streamlined services are in place to meet the crucial need for blood transfusions among Thalassemia patients. The center ensures timely and safe transfusions, giving patients renewed vitality and vitality.

4. Chelation Therapy Services:

One of the most important treatments for Thalassemia patients is chelation therapy. The centre boasts optimized facilities for administrating this therapy, ensuring that patients receive the care they require.

5. Hemoglobin Level Checkup:

To tailor treatment plans accordingly, regular and precise monitoring of haemoglobin levels is conducted. This allows for a more personalized approach, ensuring the best care for each patient.

6. Routine Checkup Facilities:

Early detection is key to addressing potential complications. The center offers comprehensive facilities for routine health checkups. This proactive approach safeguards the health of Thalassemia patients and prevents any complications from worsening.

7. Medication Management:

Efficient systems are in place for managing medications, ensuring adherence, and proper administration. This meticulous approach guarantees that patients receive the necessary medications on time, promoting their well-being.

8. Parent Counseling Services:

Thalassemia affects not only the children but also their parents. The center offers dedicated counselling services to parents, providing them with the necessary emotional support and educational resources. These services strengthen the bond between families and provide them with the tools to navigate the challenges they face.

Conclusion:

Thanks to the collective efforts of generous donors and the tireless work of the Al Mustafa Welfare Society, the Thalassemia Day Care Center is making a significant impact in the lives of children and families battling this condition. The centre's diverse and compassionate facilities are transforming gloomy days into moments of hope and joy. Each smile that lights up a child's face is a testament to the incredible difference that donors have made. Let's continue supporting the Al Mustafa Welfare Society as they strive to create a brighter future for Thalassemia patients. Together, we can make a lasting difference in their lives.

Anniversary Celebrations

Al-Mustafa Thalassemia Unit's Anniversary is celebrated yearly with a big bash, and all the children and their families celebrate and enjoy it together. This year, the venue was Askari Amusement Park. The kids went crazy with its colourful, crazy rides and festive vibe.

Governor House Visit

The Governor House of Sindh is one of Pakistan's most beautiful historic buildings. Everyone wishes to visit this building at least once in their lives. The Governor of Sindh, Mr Tessori, shows extra love and care towards those in need, especially the children. He frequently invites different groups of children for dinner or lunch at the Governor's House. Our thalassemia family also got an invitation for dinner, and the children were ecstatic. Visiting the most prestigious state house in the province as a guest was no less than an honour. It boosted their confidence and made them feel important. Such events are a great source of increasing hope and positively affect our children's overall health.

Quarterly Progress

In other news, our Thalassemia family has grown by ten new patients, and now we have 212 patients registered at Al-Mustafa Thalassemia Unit. 

Blood Transfusions Performed in the Past Quarter

More severe forms of thalassemia often require blood transfusions.

Month            No. Of Patients

January                127

February              135

March                    141

April                       117

May                         135

Hb and other Investigations Performed in the Past Quarter

Different investigations must be performed before blood transfusion and routine checkups. These investigations include Hb, CBC, Urea, Creatinine, Electrolytes and Calcium.

Month            No. Of Patients

January                  168

February                180

March                     191

April                       194

May                         184 

Iron Chelation Therapy Provided in the Past Quarter

This treatment is to remove excessive iron from the blood.

Month            No. Of Patients

January                  80

February                83

March                     80

April                        51

May                          75

 We will come back to you soon with more exciting updates.